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SMR11 – Neonatal Inpatient dataset, 1975-2002: ADRN

Title Details

SN:
888037
Title:
SMR11 – Neonatal Inpatient dataset, 1975-2002: ADRN
Principal investigator(s):
Information Services Division - NHS National Services Scotland
Data collector(s):
Information Services Division - NHS National Services Scotland

Subject Categories

  • Health services and medical care - Health

Abstract

  • Abstract copyright ADRN.

    The Neonatal Inpatient dataset provided episode level data on babies discharged from hospital from 1975 to 2002 data and supplemented the mother’s delivery information as recorded in the Mother’s Maternity and Inpatient Day Case dataset (SMR02). From 2002, the dataset was phased out and superseded by the Scottish Birth Record (SBR) due to inconsistencies in recording over time. The SBR is a universal record developed to collect information on the majority of all babies born in Scotland with the exception of miscarriages and terminations.

    The Neonatal Inpatient dataset collects a wide variety of information on the child from birth and during the babies first year of life. This includes gestation, weight, congenital anomalies, procedures and discharge details. Identifiers such as name, date of birth, Community Health Index number and postcode are also included. A wide variety of geographical measures are derived such as SIMD and Carstairs deprivation measures, census output area, NHS Board, Electoral Ward and Parliamentary constituency.

    Originally a record was generated for sick babies who:

    • Required medical care other than resuscitation immediately after birth or routine screening.
    • Have a congenital anomaly.

    The dataset is part of a wide range of health related administrative data collected by the Information Services Division (ISD), on behalf of the NHS National Services Scotland (part of NHS Scotland). ISD has been the authoritative source of Scottish national healthcare statistics for over 50 years. The data is used to enhance decisions about Scottish health care to improve the health of the people of Scotland. ISD is part of the SHIP (ScottisH Informatics Programme), a Scotland wide research platform for the collation, management, dissemination and analysis of Electronic Patient Records. As part of SHIP, ISD delivers Electronic Data Research and Innovation Service (eDRIS), a one stop shop for health research designed to provide a single point of contact and to assist researchers in study design, approvals and data (non-patient or patient identifiable) access in a secure environment (the NSS National Safe Haven).

    The Neonatal Inpatient dataset covers all babies discharged from Scottish Hospitals. Note that the information collected has changed over time. The NHS Information Centre collects similar information for England and Wales. In Northern Ireland, the Hospital Information Branch of the Department of Health, Social Services and Public Safety do likewise.

    The following geographical measures are available:

    • NHS Board of Residence
    • Council Area
    • Local Government District
    • UK Parliamentary Constituency
    • Scottish Parliamentary Constituency
    • Electoral Ward
    • NUTS
    • Data Zone
    • 2001 Census Output Area
    • 1991 Census Output Area
    • Postcode
    • Grid References
    • Urban / Rural Codes
    • Scottish Index of Multiple Deprivation
    • Carstairs Deprivation 2001
    • Carstairs Deprivation 1991

    On April 1st 2006, the configuration of NHS Boards was changed with NHS Argyll & Clyde being dissolved. The larger part of its area moved into NHS Greater Glasgow with the remainder moving to NHS Highland.

    As specified previously, the Neonatal Inpatient dataset was collected between 1975 and 2002. Due to inconsistencies in recording this dataset was then replaced by the Scottish Birth Record. In 1997 revisions were made to the dataset in order to better fit NHS Scotland reporting requirements. Separate data catalogues pre and post 1997 which reflect these changes are available in the Documentation section.

    The Neonatal Inpatient dataset has had various iterations over time. More specifically:

    • From 1975 to 1991, a universal single record per baby was recorded on discharges from special baby care units.
    • In 1992, the dataset was revised with the continuation of a universal record for all babies (known as SMR11UV) and a separate additional return for babies admitted to Special Baby Care Units (known as SMR11EP).
    • In April 1996, the universal record was abolished. Thereafter only sick babies admitted to the Special Baby Care Units or babies with congenital anomalies included in the Neonatal Inpatient dataset (SMR11).
    • In 2002, SMR11 was phased out, being replaced by a universal record for all babies born in Scotland and known as the Scottish Birth Record.

    In April 1996 diagnostic codes changed from ICD9 to ICD10. Further information on ICD10 is available in the Documentation section.

    The ISD Data Quality Assurance team is responsible for and ensuring SMR datasets are accurate, consistent and comparable across time and between sources. In 2002 the Scottish Birth Record began to replace the Neonatal Inpatient dataset, as a new universal record for all babies born in Scotland due to inconsistencies in recording. For example in 1996 it was decided that healthy babies should reside on the Maternity and Day Case Dataset (SMR02) dataset and only sick babies or babies with congenital anomalies would reside on the Neonatal Inpatient dataset. However this was not successful as there was confusion over what constituted a ‘sick baby’ and there was also an under-recording of congenital anomalies reported. From 2002 onwards there was a decline in Neonatal Inpatient dataset return from hospitals and units as they prepared to move over to the Scottish Birth Record.

    Research Usage and Linkage

    Even though the Neonatal Inpatient dataset is no longer collected it is still used for research purposes. The data is most often used as part of the Maternity and Neonatal Linked Database for a wide range of health and epidemiological research purposes.

    The Neonatal Inpatient dataset records a baby’s CHI number so it is possible to link data to other indexed datasets deterministically. The CHI number has been attached retrospectively to all records.

    The Neonatal Inpatient dataset is also linked by ISD to the Maternity and Neonatal Linked Database. This linked database contains:

    • Maternity Inpatient and Day Case (SMR02) dataset from 1981 onwards;
    • Neonatal Inpatient dataset (SMR11) from 1981 until 2003;
    • Scottish Stillbirth and Infant Death Survey from 1985 until 2010;
    • National Records of Scotland birth, still-birth and infant death records from 1981 onwards.

    The database is manually updated approximately every six months.

    Other acute datasets, such as the General / Acute Inpatient and Day Case (SMR01) and Outpatient Attendance dataset (SMR00) are not routinely added to this database but are often linked on an ad hoc basis by ISD Scotland.

    The Scottish Longitudinal Study (SLS) provides a detailed picture of the health and social status of the people of Scotland. The SLS can be linked to the Neonatal Inpatient dataset and other NHS Scotland health administrative datasets.

    The ISD Scotland Medical Record Linkage team could potentially link the Neonatal Inpatient dataset with other external data sources, and Privacy Advisory Committee (PAC) approval will still be required if using patient identifiable data.


Coverage, universe, methodology

Time period:
1975 - 2002
Country:
Scotland
Observation units:
Events and processes
Individuals
Kind of data:
Individual (micro) level
Universe:
National
All babies discharged from Scottish Hospitals from 1975 to 1996. Since April 1996 to 2002 only sick babies admitted to the Special Baby Care Units or babies with congenital anomalies were recorded.

Time dimensions:
Repeated cross-sectional study
Sampling procedures:
No sampling (total universe)
Number of units:
Approximately 1,300,000 records
Method of data collection:

Compilation or synthesis of existing material


Frequency of release:
Continuous
Data Updated:
Continuously

Administrative and access information

Copyright:
Crown copyright
Access conditions:
ADRN
Availability:
Contact the Network

Documentation


Publications

By principal investigator(s):

  • ISD Scotland (2003) Anonymisation and NHS Scotland National Data Sets, ISD Scotland.
  • Scottish Health Informatics Programme (2012) A Blueprint for Health Records Research in Scotland, Scottish Health Informatics Programme.

Resulting from secondary analysis:

  • Smith, G.C.S., Wood, A. M., Pell, J. P., Dobbie, R. (2006) 'Sudden infant death syndrome and complications in other pregnancies', The Lancet, 366(9503), pp. 2107-2111. 10.1016/S0140-6736(05)67888-9
  • Smith, G., Shah, I., White, I., Pell, J., Crossley, J., Dobbie, R. (2007) 'Maternal and biochemical predictors of antepartum stillbirth among nulliparous women in relation to gestational age of foetal death', BJOG: An International Journal of Obstetrics & Gynaecology, 114(6), pp. 705-714. 10.1111/j.1471-0528.2007.01343.x
  • Cardy, A.H., Torrance, N., Clark, D., Miedzybrodzka, Z., Sharp, L. (2009) 'Amniocentesis in the second trimester and congenital talipes equinovarus in the offspring:', Prenatal Diagnosis, 29, pp. 613-619. 10.1002/pd.2233
  • Norman, J.E., Morris, C., Chalmers, J. (2009) 'The Effect of Changing Patterns of Obstetric Care in Scotland (1980-2004) on Rates of Preterm Birth and Its Neonatal Consequences:', PLoS Medicine, 6(9). 10.1371/journal.pmed.1000153
  • Riordan, D.V., Morris, C., Hattie, J., Stark, C. (2012) 'Interbirth spacing and offspring mental health outcomes', Psychological Medicine, 42(12), pp. 2511-2521. http://dx.doi.org/10.1017/S0033291712000888
  • Riordan, D.V., Morris, C., Hattie, J., Stark, C. (2012) 'Family size and perinatal circumstances, as mental health risk factors in a Scottish birth cohort', Social Psychiatry and Psychiatric Epidemiology, 47(6), pp. 975-983. 10.1007/s00127-011-0405-5


Page last updated: 20/09/2017