open menu
hugs

The Administrative Data Research Network is an ESRC-funded project that ran from October 2013 - July 2018. It is currently at the end of its funding cycle and is no longer taking applications. Administrative data research will be taken forward in a new project, to be launched later in 2018.

Improving the experience of dementia and enhancing active life: living well with dementia

Research overview

The researchers will ask at least 1,500 people with early-stage dementia from England, Wales and Scotland, and at least 1,000 primary carers, about the factors that influence their life satisfaction, well-being and quality of life. They want to link their survey findings to health data.


Public benefit

The researchers will use these findings to create an action plan setting out what can be done by patients and their carers, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia. They will work with policy-makers to make sure the information will influence policies on services for people with dementia.


More about the project

This project aims to identify what helps people to live well or makes it difficult to live well when they have, or care for someone with, dementia. The researchers will ask at least 1,500 people with early-stage dementia from England, Wales and Scotland, and at least 1,000 primary carers, about the factors that influence their life satisfaction, well-being and quality of life.

They want to link their survey data to health information such as records held by general and mental health organisations, primary care services and death register information to find out what services people with dementia used during the study and before the study began.

The researchers will use these findings to create an action plan setting out what can be done by patients and their carers, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia. They will work with policy-makers to make sure the information will influence policies on services for people with dementia.

Linking health service use and mortality records to the survey data will improve the data quality and validity. This will allow the researchers to apply their findings to a broad range of populations with dementia and enhance communication of their findings with policy-makers and the public.


Government departments

NHS Digital


Date Approved 

June 2015 


Research team

Catherine Henderson, LSE

Sharon Nelis, Bangor University


Page last updated: 24/10/2017